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Issue Contents
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AIDS action Issue 39
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Issue 39 December 1997- February 1998 |
HIV prevention - keys to success
What makes an HIV prevention project successful? Clearly, different approaches and activities are appropriate for different groups, but successful projects have elements in common. For example, they start with the interests and concerns of the groups that they are trying to reach, and involve those groups in the design and implementation of the project.

This issue of AIDS Action summarises the principles of successful projects and looks at some projects that have put these principles into practice. In Tanzania, people in about 1,000 communities have become more involved in HIV prevention with the support of a district AIDS team that has helped them identify their priorities.
In northern Thailand, communities have developed more positive attitudes to people affected by HIV, by identifying sources of support within their own community.
A key issue for HIV projects is how to work with groups that are most at risk, who are often discriminated against by wider society, without stigmatising them further. This issue highlights a project in which Brazilians of African descent, who have not been reached by HIV prevention campaigns, are spreading messages about HIV within their own community through activities based on their culture and religion. In Costa Rica, young drug users are starting to face up to HIV with the support of a project that recognises their need to develop solidarity with each other.
Once your project has begun, how do you keep it going? This issue also contains tips on how to sustain a successful project, including activities for identifying the factors that enable a project to continue. It is often hard to keep talking about HIV prevention in the face of other pressures on people's lives. However, as the examples in this issue show, it is possible for people to act together to reduce the risk of HIV.
AIDS action Issue
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Principles of prevention |
What work best
After more than 15 years of HIV prevention activities, we have a clearer idea of what is likely to work well.
The best HIV prevention programmes use a combination of 'persuasion' and 'enablement'. Persuasion means giving people accurate information and motivating them to protect their health. This includes encouraging people who are at low risk from HIV not to change their behaviour.
Enablement means making it easier for people to put knowledge about protecting their health into practice. It includes making condoms easily available and making health services accessible and supportive. It means changing laws and policies, so that people at risk, such as young people, sex workers and injecting drug users, can be easier to reach.
Successful strategies
A review of HIV prevention programmes worldwide shows that the most successful programmes:
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involve the community | |
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build partnership and trust between people | |
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involve people with HIV in all stages | |
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develop the skills and knowledge of the community | |
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create an open and accepting environment | |
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involve other sectors as well as health (multisectoral) | |
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win support from people in power | |
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are carefully planned and evaluated | |
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recognise that even well planned approaches sometimes fail. |
Successful programmes have several
components, which together make up
a good prevention package:
information about HIV transmission
activities to encourage people to
assess risky behaviours
training in communicating about sex
and drug-related issues
access to resources such as condoms
and appropriate health services.
People's concerns
HIV prevention is rarely a person's
only concern. It is important to:
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begin with people's own interests and needs | |
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involve people in the design and implementation of the project | |
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recognise the realities that people face in their daily lives | |
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focus on the sexual health of men as well as women | |
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examine the positive aspects of sexual health, including pleasure and enjoyment, as well as problems such as unwanted pregnancy and sexually transmitted infections | |
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link sexual health to people's broader concerns. |
Young people are often targeted
with HIV prevention messages by
adults. It is especially important to
begin with their interests, encourage
their participation, and link HIV issues
into broader concerns, such as
relationships, families and plans for
the future.
Injecting drug users are at risk of
HIV from both sex and sharing
injecting equipment. HIV prevention
strategies also include:
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stopping injecting drugs, which may mean switching to non-injected drugs (this is the safest option) | |
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using sterile needles and syringes, and not sharing them (safe if done every time) | |
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cleaning equipment between use (safe but difficult to do properly). |
There is evidence that drug injectors
can and will change their behaviour to
reduce HIV-related risks.
Sex workers and men who have
sex with other men Sex work and
sex between men are highly stigmatised
and illegal in some countries.
For these reasons, these groups can
be difficult to reach. The best way may
be through community-based
outreach workers or peer educators.
Essential evaluation Evaluation is essential to the success
of HIV prevention programmes.
Evaluation can provide useful feedback
for developing the project. Many
projects are not evaluated because of
pressure on time and resources.
However, evaluation need not be
expensive or time consuming if the
aims and activities of the project are
properly thought out and written
down before the project begins.
New opportunities
New technologies are continually
becoming available. Vaginal microbicides,
which kill HIV and other
sexually transmitted infections, are
being developed. In some countries,
the female condom is becoming more
available and affordable, providing
more choice, especially for women
whose partners are reluctant to take
responsibility for sexual and
reproductive health.
Sources:
HIV prevention works. In: Highlights from an official satellite symposium of the XI
International Conference on AIDS, Vancouver. Ottawa: Canadian Public Health Association.
Sexual behaviour and HIV/AIDS: a review of the effectiveness of health education and
health promotion. Aggleton, P. Utrecht: Landelijk Centrum GVO for the International
Union for Health Promotion and Health Education and the Commission of the
European Communities, 1994.
Success in HIV prevention - some strategies and approaches (see page
8).
Peter Aggleton, Director, Thomas
Coram Research Unit, Institute of
Education, 27/28 Woburn Square,
London WC1H 0AA, UK.
AIDS action Issue
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Prevention in practice |
More than a health issue
A district AIDS-Action team is strengthening HIV prevention and care programmes in a rural district of Tanzania.
Magu is a rural district of Tanzania which borders lake Victoria and is crossed by a major truck route. About one in 20 adults is HIV positive. Sexually transmitted diseases are common.
In 1995, the Tanzania Netherlands Support Project on AIDS (TANESA) organised a three-day workshop for members of the district primary health care (PHC) committee to review the district HIV/AIDS programme. Committee members included staff from health, community development, education, water and fisheries sectors and the district planning office. local NGOs and churches were also invited.

Participants found that the HIV programme had not been working well, because it had been difficult for the committee to meet.
Sector heads were often not available for meetings. The PHC structure at community level was also weak, because it relied mainly on the health sector.
So the workshop decided to set up a multi sectoral 'AIDS-Action' team, consisting of the district planning officer (chair); district AIDS control coordinator, who is from the health sector (secretary); and representatives of the planning, health, development, culture and education sectors and NGOs. The aims of the team are to:
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represent relevant sectors and NGOs | |
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plan and coordinate all AIDS-related activities at district level | |
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mobilise resources for HIV/AIDS prevention activities at district level | |
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meet quarterly and report to the district PHC committee. |
The new arrangement works much
better. The secretary of the AIDS-Action
team liaises directly with heads
of departments of the various sectors.
The district planning officer, as chair,
provides a strong link with the district
council, since he also plans council
meetings and proposes the council
budget.
The team's main contact with the
local community is through the social
services committees (part of the
village government, responsible for
water, education and health). These
committees run activities such as local
drama groups and contribute in cash
or kind to HIV prevention campaigns.
Supporting councillors
District councillors have often found
it difficult to know how to spend their
limited budget. The AIDS-Action team
has helped to identify priorities by
organising a 'mapping' programme to
identify areas of high HIV risk. The
team asked separate groups of men and women, including young people,
to draw a map of their community,
showing places where they felt at risk of getting HIV. This was done in about
1,000 communities. The maps were
used to start discussions about the
problems people faced when trying to
avoid risky behaviour.
Problems and proposed solutions
were discussed with the whole
community, using the local drama
groups. The mapping groups then
proposed actions for change, which
they discussed with community
leaders. These included by-laws to
regulate opening hours of bars, video
shows and dances, and restricting
petty trading to daylight hours.
Punishment for forced sex has been
A district AIDS-Action team is strengthening HIV prevention increased. Condom distribution has been Improved.
Because of its link with the district
council, the AIDS-Action team has
succeeded in mobilising 3 per cent of
the district council budget for HIV
prevention programmes. Magu is the
first district council in Tanzania to
make such a contribution.
Change is slow
The team has had some problems,
such as delayed transfer of funds from
the district council. The team had to
lobby the councillors and show them
the mapping plans to get the funds
transferred. They also needed to
develop the confidence of the village
social services committees to become
involved in HIV prevention.
District HIV programme officers
need to keep in close contact with
village communities to keep up
people's enthusiasm for the
programme. Exchange visits between
villages, organised by the programme
officers, have helped to do this.
The programme is being evaluated
in one ward of the district. Early
results suggest a noticeable reduction
in the number of partners of both
men and women, although condom
use does not appear to have
increased.
Dick Schapink, Dr Ng'weshemi,
Betty Chiduo, Deus Mayunga,
Venance Nyonyo, TAN ESA, PO Box
434, Mwanza, Tanzania.
AIDS action Issue
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Prevention in practice |
Community support
Village communities in northern Thailand have identified resources that they can use to support people affected by HIV.
Nearly half the people affected by HIV in Thailand live in the north. Poverty is high and communities have little understanding of how to support families affected by HIV.
In 1993, CARE International in Thailand started a project to improve people's understanding of HIV issues, and support families affected by HIV. Improving the care of people with HIV can also help to make HIV prevention more effective.
The Living with AIDS project covers over 140 villages. It is based on two concepts - 'comprehensive care' and the 'continuum of care'. Comprehensive care means setting up systems to provide families with medical, psychological and economic support. Continuum of care means ensuring continued care, by strengthening links within families affected by HIV, and between family members, health services and others within and outside the local community.
Identifying resources
When the project began, most people did not know how to use local resources that could support families affected by HIV. They did not regard the community itself as a resource, but often looked to outside programmes.
CARE uses a participatory process of 'resource mapping' to identify local resources that are available but not being used.
CARE staff and village volunteers - about four people in each village who have been selected and trained by local health centre staff - organise a session with local leaders and others who are interested in helping families affected by HIV. These may include affected families themselves, although they are not identified as such.

The session starts with a discussion about the health situation in the village. The discussion inevitably leads to HIV and how the community is coping. Members of the group then draw a map of the village. They discuss people and organisations from whom medical, psychological and economic support may be sought for HIV-affected families. They draw these on the map. Resources may include:
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medical support (including home-based care) - district hospital, village primary health care centre, traditional healer, places to obtain herbal medicines, village volunteers, local drug store, Buddhist monks, family members | |
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psychological support - religious institutions, teachers, local groups of people with HIV, respected people in the village, health centre staff, district doctor, family, neighbours | |
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economic support - existing groups such as sewing groups or farmers, village heads, local employers, village revolving funds, provincial public welfare office, relatives, schools, projects that provide assistance for children or occupational support (such as grants or revolving funds, technical advice or marketing support). |
The groups are asked three
questions about each resource:
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Is it being used? | |
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If not, what is preventing it from being used? | |
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If it is, how can it be made more useful? |
Making plans
The discussions may take several
sessions to complete, depending how
interested the group is and how
detailed the discussions are. In villages
with a group of people with HIV,
separate discussions are held with this group.
By the last session, the group is
more aware of the needs of affected
families and the potential role of the
community in helping to meet those
needs. The discussions lead to action
plans to make better use of the
resources.
Results of the discussions are
entered onto the map or listed on
newsprint paper kept in the village.
The maps and lists are reviewed from
time to time to see whether use of
local resources has improved.
After the mapping exercise, the
community's awareness of sources of
support, and ways in which the
community itself can help affected
families, has grown significantly,
particularly among families with HIV-positive
members. Greater awareness
has also led to positive attitudes to
families affected by HIV.
Prom boon Panitchpakdi, CARE
International in Thailand, 185-187
Phaholyothin Soi II, Phaholyothin
Road, Bangkok 10-100, Thailand.
AIDS action Issue
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Prevention in practice |
Overcoming prejudice
Project Arayé is one of the first HIV prevention projects in Brazil to work specifically with the Afro-Brazilian community.
Brazil's population includes a high proportion of people of African descent. Racism exists but is commonly denied. Most Afro-Brazilians live in poor areas, with poor health care services, sanitation, schools and transport. Afro-Brazilians are more affected by HIV than the population as a whole, as HIV is linked to poverty.

Project Arayé ('to be alive') was started in 1996 to tackle issues of race and HIV. It recognises that Afro-Brazilians contribute to the country's culture, but do not benefit from their contribution. It is staffed by Afro-Brazilians with a knowledge of health issues and Afro-Brazilian culture. They include an Afro-Reggae percussionist, a youth worker from a shanty town, and a priest who is also a community health worker.
A key challenge has been to over-come denial of HIV and encourage Afro-Brazilians to recognise that HIV affects them. Community leaders are supported to link sexual health and HIV with other health concerns that affect Afro-Brazilians, such as sickle cell anaemia, diabetes and leprosy. Leaders range from religious leaders to rap musicians, artists and people respected by their peer group - often the most rebellious and anti-establishment people.
The project builds on religious and cultural traditions. Activities include visits to samba dance schools, Umbanda and Candomblé temples (the two main Afro-Brazilian religions) and street youth groups, to provide information about HIV. A project newsletter is distributed to Afro-Brazilians who may not be aware of HIV. A health education campaign, using positive images of Afro-Brazilians, is run in magazines read by Afro-Brazilians.
Project Arayé has developed some useful links. A local hip-hop group has asked it to work with them on HIV prevention. Religious leaders are looking at herbal remedies for treating HIV infections and alternatives to razors for ritual cutting, and have started showing solidarity with HIV-positive people by giving them spiritual and practical support.
Jose Marmo da Silva, Jacinto Correa, Veriano Terto, ABIA, Av. Rio Branco 43/22, Centro, 20090-003 Rio de Janeiro RJ, Brazil.
Building solidarity
In a poor part of San José, Costa Rica, young men who have been rejected by society are learning how to build trust.
EI Salon is a centre where, each night, 20-40 young men gather. These are the 'sharks' of the street, rejected by their family and friends. They are on drugs and rely on stealing and sex work to pay for them.
Inside EI Salon, the young men settle into a routine of washing their clothes and taking a shower. Board games, puzzles and other entertainment fill their time, but they are wary of each other. There have often been disputes.
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After eight months, however, there
is a growing feeling of belonging among
the more regular visitors. EI Salon may
be beginning to be seen as a place that
cares. The project can now turn more
attention to HIV prevention. |
![]() |
Antonio Bustamante, EI Salon,
Apartado 102 42, San Jose - 1000,
Costa Rica.
AIDS action Issue
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Health worker stress |
Building on success
AIDS Action looks at how small projects can grow bigger.
Most groups involved in HIV prevention start small. Expanding can be difficult. Here are some practical tips:
Work with the people in most need without stigmatising them Groups that are clear about what makes people vulnerable to HIV, and who the most vulnerable people are, are most likely to succeed.
Identify the problem clearly Many groups believe that, if they can change people's views, people will change their behaviour. However, people's behaviour depends on other factors too. For example, people may sell sex because they need the money, even though they know it can be risky.
Use participatory methodologies Find out the views and needs of the people you are working with, and draw up plans with them. A non-governmental organisation (NGO) in Bangladesh started a treatment centre for drug users. After a while they asked drug users whether the centre met their needs. They found that no women used the centre, although some drug users were women. The women were unwilling to go to a centre that was for drug users. So the NGO changed the centre to a health centre serving the whole community.
Gain support from the community People who feel that a project will benefit them will be more willing to support it. After some time, the NGO's support for the health centre became unnecessary. The centre is now supported by the local community through fundraising activities such as musical events and donations of daily newspapers made available in the centre.
Build on what you do best A Bangladeshi NGO which ran a successful HIV prevention project with truck drivers was tempted to spread the work across a wider area. They first reviewed the project and identified several weaknesses - they were not reaching women, nor were they reaching the truckers' friends, families or other contacts, such as hotel staff. The NGO is now looking to involve more of these people, rather than spread to other areas.
Establish your group Established groups are in a better position to expand. Try to obtain legal status as a registered charity or recognised group. Keep records of meetings and activities. Have a system of financial control, even if this is simply keeping money in a safe box and recording payments in and out.
Form local partnerships Develop partnerships with other NGOs, local government departments and community groups. An organisation in the Philippines invited a range of local community groups to its annual meeting. Some HIV prevention groups were worried about attending. However, by attending they formed some useful partnerships. During World AIDS Day, for example, the Rotary Clubs participated in HIV prevention activities which previously the HIV groups had been running on their own.
With thanks to Mrs Kabita Begum, HASAB, Bangladesh and Arturo Cristobal, PHANSuP, Philippines.
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Activity
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Activity
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AIDS action Issue
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6 Page 7 8
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Clinical update |
HIV-related diarrhoea
Diarrhoea is a common problem for people with HIV. AIDS Action outlines ways to prevent and treat it.
Diarrhoea is the passage of loose stools three or more times a day. Persistent diarrhoea (lasting more than two weeks) is more common in people who have advanced HIV disease than in those who do not. For many it is a major problem.
The main dangers of diarrhoea are dehydration and malnutrition. People with HIV-related diarrhoea can become malnourished and lose weight quickly, mainly because they do not eat well because of poor appetite. Also, because weight loss ('slim') is associated with HIV, a person with diarrhoea may be assumed to have HIV, and be stigmatised.
Preventing diarrhoea
Good hygiene and nutrition are the best ways to prevent diarrhoea. Drinking boiled water is best, but is often not practical. Washing hands frequently with soap is more practical. Other strategies are to: store food under a cover; wash eating and cooking utensils; wash raw fruit and vegetables; dispose of waste properly; keep anything dirty, such as soiled bedding, out of reach of children.
To prevent and treat diarrhoea, people with HIV need nutritious food that is easy to digest (see box: 'Eating well').
Treating diarrhoea
Common causes of persistent diarrhoea in developing countries include protozoas (microscopic organisms) such as cryptosporidia, isospora and microsporidia. Other causes include bacteria such as shigella, and probably viruses. The HIV virus might cause diarrhoea, although there is no conclusive evidence.
The cause of HIV-related diarrhoea varies from one area to another, and is often quite localised. It is useful to identify common causes in an area, and draw up treatment guidelines for the area. Ideally, these should cover the major causes, so that people need not be investigated individually.
Adults with diarrhoea should:
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Drink more fluids than usual. | |
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Continue to eat (see: 'Eating well'). | |
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Take vitamin supplements such as folic acid and vitamins C and A, if available. | |
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Treat dehydration with oral rehydration salts (ORS). | |
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Relieve symptoms with codeine phosphate, loperamide or diphen-oxylate. These drugs reduce the pain, volume and frequency of diarrhoea, although possible side-effects include dryness of the mouth, sleepiness, loss of coordination, blurred vision and distended abdomen. | |
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Treat the cause of the diarrhoea with treatments such as TMP/SMX (Isospora); metronidazole (giardia); albendazole (microsporidia, crypto-sporidia). However, resistance can develop. For example, salmonella and virtually all Shigella in Zambia are resistant to these drugs, so people with HIV in Zambia who have bloody diarrhoea should take nalidixic acid and metronidazole. Also consider TB as the cause. Some traditional herbal remedies control diarrhoea. |
People who do not respond to
these treatments are seriously ill. The
main aim should be to relieve their
distress, using codeine phosphate or
loperamide, and offer fluid - oral
rehydration or intravenous fluids in
hospital. For someone with fever, try
systemic antibiotics such as intravenous
or intramuscular cephalosporins.
It is important to keep the area
around someone with diarrhoea clean,
to prevent infecting other people.
Dr Paul Kelly, Research Fellow,
Digestive Diseases Research
Centre, St Bartholomew's and
Royal London School of Medicine
and Dentistry, Turner Street,
London EI 2AD, UK.
Children
Do not give anti-diarrhoeal drugs to children under five years of age. Give
children plenty to eat and drink (see: 'Eating well'),
plus vitamin and mineral tablets if available. Children will continue to need
extra food after the diarrhoea has gone, to enable them to regain any lost weight.
For further information see 'Caring
with confidence'. Details on Page 8.
AIDS action Issue
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7 Page 8
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Letters / Resources |
Letters
The right psychology
In my part of the world, AIDS is viewed as a curse. Because of this, people with HIV are isolated. They are afraid to expose their illness by going for tests or to workshops organised by health workers.
The major tool needed to make HIV prevention work is essentially tolerance, patience and the right psychological approach. It is better for a health worker to start talking about the advantages of safer sex, treatment and preventive measures than about the destructive tendencies of AIDS.
The church can help to make HIV prevention successful by including education about AIDS awareness and prevention in sermons.
Society should be further educated about seeing AIDS as a disease and not a curse. Then people with HIV would be free to disclose their ailment without fear of retribution.
Kingsley Chiwuike Ukaoha, 18 Okundaye Street, New Benin, Benin City, Edo State, Nigeria.Resources
Success in HIV prevention - some strategies and approaches provides an overview of research into HIV prevention with different groups (gay men, young people, etc) and gives sources of further information.
£6.95 from AVERT; 11-13 Denne Parode, Horsham RH 12 1JD, UK.
Project design for program managers: conducting a workshop on planning community-based projects is a training manual for trainers of project managers in NGOs and government ministries. It provides guidelines for a five-day workshop on planning, implementing and managing projects. It contains participatory teaching and training tools, handouts and ideas for activities.
US$15 (plus postage and packing) in English, French and Spanish from CEDPA, 1717 Massachusetts Ave NO, Suite 200, Washington DC 20036, USA.
HIV/AIDS and development documents how HIV affects people and communities, and suggests strategies for NGOs. It is accompanied by the video, Mashayabhuqe: AIDS hits everyone. It can be used in workshops with an accompanying worksheet.
R199/US$40 from the Film Resource Unit, PO Box 11065, Johannesburg 2000, South Africa.
UNAIDS publications
UNAIDS is producing a 'Best practice collection' which includes Technical updates (key issues for technical and professional audiences), Points of view (less technical, for journalists), and Key materials (essential reading produced by UN or other organisations). Materials already available include:
Technical updates on: blood safety, community mobilisation. prisons, refugees, men who have sex with men, schools, counselling/testing, mother-to-child transmission, microbicides.
Points of view on: blood safety, prisons, refugees, tuberculosis, gender and HIV/AIDS, female condom.
Key materials on: refugees, schools, counselling/testing, impact of HIV/AIDS on children and families, sexually transmitted diseases, children and youth, human rights.
Free (single copies only) from UNAIDS Information Centre, CH-1211 Geneva 27, Switzerland. E-mail: unaids@unaids.org
NEW! A common cause and Youth-to- youth (Strategies for Hope series, nos. 12 & 13) document how community-based initiatives in four African countries are helping young people to make better informed decisions about their sexual behaviour.
£3.25 each (free for organisations in sub-Saharan Africa unable to pay in foreign currency) from TALC, PO Box 49, St Albans, Herts AL1 5TX, UK.
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Managing editor Nel Druce
Commissioning editor Sian Long
Executive editor Celia Till
Design and production Ingrid Emsden
Editorial advisory group Calle Almedal, Kathy Attawell, Dr Nina Castilio-Caradang, Nancy Fee, Susie Foster, Peter Gordon, Dr Sam Kalibala, Dr Ute Küpper, Dr Tuti Parwati Merati, Dr Chandra Mouli, Dr Arletty Pinel, Dr Sunanda Ray, Daniel Tarantola, Dr Eric van Praag, Rakesh Rajani, Kate Thomson
Aids Action Publishing partners HAIN (the Philippines) SANASO Secretariat (Zimbabwe) ENDA (Senegal) ABIA (Brazil) Colectivo Sol (Mexico) Consultants based at University Eduardo Mondlane (Mozambique)
AHRTAG's AIDS programme is supported by CAFOD, Charity Projects, Christian Aid, DfkF/JFS, Finnish Government, HIVOS, ICCO, Memisa Medicus Mundi, Misereor, Norwegian Red Cross, Oxfam, Save the Children Fund, SIDA.
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